Developing research resources and minimum data sets for care homes

The Developing research resources and minimum data set for Care Homesā€™ Adoption and use (DACHA) study, led by the University of Hertfordshire, aims to identify the essential data needed to support research, improve services, and promote innovation in care homes.Ā The four-year programme is funded by the NIHR Health Service & Delivery Research and supported by the NIHR Applied Research Collaboration East of England programme.Ā 

Aims of the study

The aims of the study were:

  • To establish what data needs to be in place to support research, service development and uptake of innovation in care homes.
  • To synthesise existing evidence and data sources with care home generated resident data to deliver an agreed data set ā€“ minimum data set (MDS) ā€“ that is usable and authoritative for different user groups.

Ā 

The DACHA study developed a minimum dataset (MDS) that linked care home residentsā€™ data with their routine data held by NHS acute and primary care services. It was piloted with data from 727 residents from 45 care homes across 3 ICSs, demonstrating the viability of the MDS.

Woman in care home smiling

PRSB assurance

PRSBā€™s role in the study was to provide support and independent assurance of the MDS and the methodology for its development. The DACHA methodology was reviewed and found to follow PRSB principles and methodology involving evidence-based development and effective stakeholder consultation leading to a viable MDS demonstrated through pilot testing.

The PRSBā€™s independent assurance committee confirmed PRSB assurance of the DACHA MDS and approved the report which included 2 recommendations:

  1. Where data was not available for the pilot, the MDS has blanks instead of details of how the data was derived. The MDS could benefit from having details for existing standards or value sets inserted in the blanks for reference for future uses of the MDS.
  2. PRSB support the conclusions of the report that being able to obtain data from GP systems, or from the emerging shared care records (which bring in data from GP systems and other local systems), would improve the quality of data compared with data derived from secondary uses datasets such as SUS, particularly in areas such as diagnoses. Appendix 7 of the published Gordon et al (DACHA) report identifies data items that DACHA anticipated obtaining from GP systems but were not able to during the study. A note was added to the end of the Final prototype MDS document to explain the benefit of having GP data if possible

Man with learning disabilities in session with his carer

Resources

PRSB assurance report
Find out more about PRBS’s assurance work in our DACHA assurance report.

DACHA report
Piloting a minimum data set for older people living in care homes in England: a developmental study

DACHA study website
DACHA: Developing research resources And minimum data set for Care Homesā€™ Adoption and use is a study being led by the University of Hertfordshire. Find out more abut the study and its findings on this website.