Palliative and End of Life Care
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About this toolkit

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Getting to grips with the standard


Getting people on board

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Taking stock and planning

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Putting the standard into practice

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Shared resources and learning

About this toolkit

This toolkit is to help local health and care systems implement the PRSB (Professional Record Standards Body) Palliative and End of Life Care Information Standard so that people get the best care at the end of their life. The standard will ensure that individuals are at the heart of important decision making and that the right information is available to the health and care professionals who need it, making it easier for everyone involved in a person’s care.

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The standard has been developed alongside patients, carers, families and health and care professionals

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The standard represents best practice and is endorsed by key professional bodies.

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The standard is for use across the whole of the United Kingdom

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The standard can be embedded into any care record system.

This toolkit will help with:

  • Clinical user experience (what information should be collected)
  • Information modelling for incorporating into local systems design
  • Interoperability and sharing of data with other settings and systems
  • Building support and engagement with local staff who will be affected by the change. 

This toolkit is for:

Health and care professionals



Project and programme managers

Digital leaders such as CIO’s, CCIO’s, and CNIO’s


System suppliers

Technical staff

Information and data quality champions

The toolkit is divided into sections that address each stage of the change management process needed to adopt standards. 

It is intended to help all professionals, whatever their role in digital transformation. However, depending on your role in the change management process you may find certain sections more relevant to your needs. 

It is vital to remember that successful change programmes often require several iterations of the sections in this toolkit. These stages are the lifecycle of a standard adoption programme from the first iteration through to completion and can be repeated at any point in your implementation programme.

The sections in the toolkit are:

Getting to grips with the standard

Describes the standard, how and when to use it . This section is useful for health and care professionals, commissioners, transformation managers and leaders, technical staff and IT leads as well as system suppliers.

Getting people on board

Sets out how to create a vision, enlist leaders and build a team to deliver change and its benefits. Transformation managers, project managers, digital leaders and champions may find this section particularly useful.

Taking stock and planning

Describes how to baseline the current position and design a roadmap for the change programme. This section is particularly relevant to project managers, transformation managers, commissioners, technical staff and digital leaders and champions, though others may also find it useful.

Putting the standard into practice

Sets out how to commission the changes, address training needs, ensure standards meet safety requirements and plan an evaluation programme. This section is useful for commissioners, transformation and project managers, as well as health and care professionals, digital leaders and champions.

Shared learning and resources

Will feature case studies, lessons learned, resources, links and details of how to join communities of interest. Users could include anyone involved in the change management project.

Before you start

Before you get started you may want to read our Standards explainer which describes what information record standards are, why they are needed, and how they support better care.

  • Standards explained
    The Standards explainer describes what information record standards are, why they are needed, and how they support better care.


Successful transformational change

To succeed transformation, programmes need to be built on strong foundations with clear goals in mind, the right leadership and an engaged coalition of staff and stakeholders. Done well, they result in new, more efficient and effective ways of working that deliver better services and care. As such they require planning, committed leaders and project management.

If you’re adopting this standard it may be useful to think of doing so in terms of a change management approach. This toolkit presumes that your organisation and partners in the local health and care economy will have processes and people in place who can support the change management programme. To get you started, you may find our information on transformational change useful.


PRSB Standards Explained

Why we need standards to record our health and care information in a consistent way so that it can be made available whenever it is needed.

Making change happen

Transformation programmes need clear goals, the right leadership and engaged staff and stakeholders. Get started by reading our information on transformational change.

PRSB Support Available

If you have a question for PRSB, please contact our support team. We have an expert team who can help you find the answer, or direct you to the right place.