About this toolkit
This toolkit is to help local health and care systems implement the PRSB (Professional Record Standards Body) Palliative and End of Life Care Information Standard so that people get the best care at the end of their life. The standard will ensure that individuals are at the heart of important decision making and that the right information is available to the health and care professionals who need it, making it easier for everyone involved in a person’s care.
The standard has been developed alongside patients, carers, families and health and care professionals
The standard represents best practice and is endorsed by key professional bodies.
The standard is for use across the whole of the United Kingdom
The standard can be embedded into any care record system.
This toolkit will help with:
- Clinical user experience (what information should be collected)
- Information modelling for incorporating into local systems design
- Interoperability and sharing of data with other settings and systems
- Building support and engagement with local staff who will be affected by the change.
This toolkit is for:
Health and care professionals
Transformation
leads
Commissioners
Project and programme managers
Digital leaders such as CIO’s, CCIO’s, and CNIO’s
System suppliers
Technical staff
Information and data quality champions
What does it include?
It includes specific tools and advice on successfully adopting standards. Using these resources will help you plan, build support and engage effectively with key stakeholders as you implement the standard to provide high-quality and personalised care, and improve the experience for the person, their carer, and their families. It does not include general advice and guidance on managing change programmes.
Adopting standards is not a simple technical fix; it is transformational in its scope and is best achieved through an iterative approach, building on learning as you undertake each cycle of change. Done well, it results in new, more efficient and effective ways of working that deliver better services and care. As such it requires thorough planning, committed leaders and tight project management.
How to use the toolkit
The toolkit is divided into sections that address each stage of the change management process needed to adopt standards.
It is intended to help all professionals, whatever their role in digital transformation. However, depending on your role in the change management process you may find certain sections more relevant to your needs.
It is vital to remember that successful change programmes often require several iterations of the sections in this toolkit. These stages are the lifecycle of a standard adoption programme from the first iteration through to completion and can be repeated at any point in your implementation programme.
The sections in the toolkit are:
Getting to grips with the standard
Describes the standard, how and when to use it . This section is useful for health and care professionals, commissioners, transformation managers and leaders, technical staff and IT leads as well as system suppliers.
Getting people on board
Sets out how to create a vision, enlist leaders and build a team to deliver change and its benefits. Transformation managers, project managers, digital leaders and champions may find this section particularly useful.
Taking stock and planning
Putting the standard into practice
Shared learning and resources
Will feature case studies, lessons learned, resources, links and details of how to join communities of interest. Users could include anyone involved in the change management project.
Before you start
Before you get started you may want to read our Standards explainer which describes what information record standards are, why they are needed, and how they support better care.
- Standards explained
The Standards explainer describes what information record standards are, why they are needed, and how they support better care.
Successful transformational change
To succeed transformation, programmes need to be built on strong foundations with clear goals in mind, the right leadership and an engaged coalition of staff and stakeholders. Done well, they result in new, more efficient and effective ways of working that deliver better services and care. As such they require planning, committed leaders and project management.
If you’re adopting this standard it may be useful to think of doing so in terms of a change management approach. This toolkit presumes that your organisation and partners in the local health and care economy will have processes and people in place who can support the change management programme. To get you started, you may find our information on transformational change useful.
PRSB Standards Explained
Why we need standards to record our health and care information in a consistent way so that it can be made available whenever it is needed.
Making change happen
Transformation programmes need clear goals, the right leadership and engaged staff and stakeholders. Get started by reading our information on transformational change.
PRSB Support Available
If you have a question for PRSB, please contact our support team. We have an expert team who can help you find the answer, or direct you to the right place.