Palliative and End of Life Care
Death and dying affects all of us, and the quality and accessibility of palliative and end of life care is vital to everyone.
The needs of people of all ages who are at or near the end of life, their families, carers and communities, should be addressed, taking into account their priorities, preferences and wishes. Personalised care as individuals near the end of life will result in a better experience, tailored around what really matters to the person, and create more sustainable NHS services.
PRSB has updated the SCCI 1580 standard for palliative and end of life care coordination to ensure that professionals and individuals have access to appropriate information to support decision making for those with palliative care needs and those who are approaching the end of their lives. The standard supports the Universal Principles for Advance Care Planning.
PRSB was commissioned by the NHS to produce the Palliative and End of Life Care Information Standard, otherwise known as the PEoLC Information Standard or EPaCCS Information Standard. PRSB worked with NHS colleagues, including a range of subject matter experts, professionals and PRSB member organisations representing the four nations of the UK, patient representative groups and the voluntary, charitable and social enterprise sectors.
The standard defines the information that should form part of a person’s shared care record for use whenever or wherever a person accesses services.
The standard applies to:
- All services that support individuals receiving palliative or end of life care.
- It was developed in consultation with a wide range of professionals from all four nations, including from professionals working in primary, secondary, community and third sector services involved in palliative and end of life care, IT suppliers and people who use services, and carers.
Provenance data for this standard will be shown in a separate information model in the next iteration of the standard following its 3-year maintenance release. Provenance data describes who made the record entry or carried out the activity, where and when. The latest provenance model is available on our website.
PRSB has been commissioned by the NHS to develop an Implementation Toolkit to support adoption of the Palliative and End of Life Care Information Standard by clinical and professional teams and system suppliers. PRSB will be developing and testing the toolkit with a number of services and sites and will be gathering feedback to improve the standard and the supporting materials. Publication of the toolkit is expected in Autumn 2022. For more information contact firstname.lastname@example.org.
The Palliative and End of Life Care Information standard has been endorsed by:
- Association for Palliative Medicine of Great Britain and Ireland
- British Geriatrics Society
- Care Provider Alliance
- Compassion in Dying
- Intensive Care Society
- Resuscitation Council (UK)
- Royal College of Emergency Medicine
- Royal College of Nursing
- Royal College of Occupational Therapists
- Royal College of Physicians
- Royal College of Physicians and Surgeons of Glasgow
- Royal College of Psychiatrists
- Royal College of Radiologists
- Royal Pharmaceutical Society
The information models shown here are also available in JSON and HTML formats on request. Please contact us at email@example.com.
This toolkit has been developed to support the adoption and implementation of the Palliative and End of Life Care Information Standard. The materials and resources will support you with your local implementation of the standard.
View the toolkit
IHRIM record correction guidance
Despite vigilance when filing information in records, mistakes can occur. The Institute of Health Records and Information Management has guidance to support professionals in making corrections following errors.
PCSP implementation toolkit
This toolkit has been developed to support the adoption and implementation of this information standard. The materials and resources will support you with your local implementation of the standard.
View the toolkit