An innovative new information standard for child health will help everyone involved in caring for children share information using standardised paperless digital records.
Current release: 13.12.2018
The PRSB has produced standards for child health records to support the Healthy Child Programme and its prevention agenda, by improving health and wellbeing and empowering parents in their children's care and development.
The new PRSB information standard spells out what information on screening tests, immunisations and developmental milestones should be accessible to ensure that children receive appropriate care. Today's innovation means that everyone involved in a child's care, including parents, will in the future have secure access to a standardised set of paperless, digital child health records.
The standard, published by the PRSB, is part of the work by NHS England and NHS Digital to improve the health of children by using digital technology that promotes better information sharing.
Clinical leadership for the project was provided by the Royal College of Paediatrics and Child Health (RCPCH) and the Royal College of General Practitioners (RCGP), and the work was conducted in partnership with the Royal College of Physicians (RCP) Health Informatics Unit (HIU).
The PRSB standard has helped to inform the Healthy child event specifications, owned by NHS Digital and used to support the creation of the FHIR Events Catalogue. These NHS Digital documents are also published in the supporting documents tab.
Current release: 13.12.2018
The Healthy child record is the set of information for exchange between professionals and parents to support care of a child. The standard was created by NHS Digital and PRSB (supported by HIU) and the supporting documents are provided here;
- Healthy child record final report V1
The final report describes the process and engagement for the development of the Healthy child record standard.
Standard specification documents
- Healthy child record specification V2- new
View the record specification (as seen in the contents section) as an Excel file. Details of the changes made since V1 can be found in the following Release notes
- Healthy Child Event Specification v2 - new
Detailed content for the events, including values and business rules used to support the creation of the FHIR Events Catalogue. This has been updated in December 2018. Please refer to the summary report for details of the review process.
Additional supporting resources
- Implementation Guidance - updated
Further detail on how providers and suppliers can implement the Healthy child record standard can be found . This documentation produced by NHS Digital gives guidance on specific headings, as agreed in the consultation process
- Information standards notice
- Clinical safety case report - new
- Technical Specifications - Should local areas wish to share data in their region then this should be done as an electronic message. These are available on NHS Developer Network and will be updated as the development cycle continues (https://developer.nhs.uk/apis/dch-beta/).
Endorsements and support
The following professional bodies have endorsed the Healthy child record standard.
- Royal College of Physicians
- Royal College of Nursing
- Royal College of General Practitioners
- Royal College of Obstetricians and Gynaecologists
- The Royal College of Occupational Therapists
- The Royal College of Paediatrics & Child Health
- The Royal College of Midwives
- The Royal College of Speech and Language Therapists
- The Chartered Society of Physiotherapy
- Community Practitioners and Health Visitors Association
- Association of British Paediatric Nurses
- British Association of Community Child Health
- British Academy of Childhood Disability
- British Association of Perinatal Medicine
- Association of UK Dieticians
- British & Irish Orthoptic Society
- Institute of Health Records Information Management (IHRIM)
Clinical leadership was provided by the Royal College of Paediatrics and Child Health (RCPCH) and the Royal College of General Practitioners (RCGP). Work was conducted in partnership with the Royal College of Physicians (RCP) Health Informatics Unit (HIU).