The core information standard defines a set of information that can potentially be shared between systems in different sites and settings, among professionals and people using services.
The standard has been produced following consultation with more than 1,500 individuals and organisations through online and face-to-face workshops and a survey. More than 1000 people completed the survey for this project, with 90% agreeing that joining up digital health and care information will lead to better, safer and more personalised services across the UK. Around 80% of respondents also supported personalising care through use of an ‘about me’ section in their care records.
National guidance around information governance is being tested by local health and care record localities to ensure that people can be confident their information will be viewed by professionals on a ‘need to know basis’ only. They are also adopting guidance on cyber security to make sure that peoples’ sensitive health and care data is held securely.
The technical messaging standards (based on the core information standard) to enable the information to be shared between systems are to be developed.
The Core Information Standard has been endorsed by the following organisations:
- Academy of Medical Royal Colleges
- British Dietetic Association (BDA)
- British Orthodontic Society
- British Psychological Society
- Care Providers Alliance
- Carers UK
- Chartered Society of Physiotherapists
- College of Paramedics
- Institute of Health Records and Information Management
- National Voices
- Patient Information Forum
- Queens Nursing Institute
- Royal College of Anaesthetists
- Royal College of Emergency Medicine
- Royal College of General Practitioners
- Royal College of Midwives
- Royal College of Nursing
- Royal College of Obstetricians & Gynaecologists
- Royal College of Ophthalmologists
- Royal College of Paediatrics & Child Health
- Royal College of Pathologists
- Royal College of Physicians
- Royal College of Speech and Language Therapists
- Royal College of Surgeons
- Royal Pharmaceutical Society
* v1 update and enhancement in progress.
The core information is currently being updated to:
- Add more detail to the information model to support implementation and incorporate recent improvements in terminology
- Add a relationship model to maintain the context of information in the record (e.g. for a procedure or investigation result to a hospital episode or discharge)
- Include a revised “About me”, new “Local Authority information” and the “Care Homes View” developed as part of the work on standards to support health and care integration [these can have hyper links to the new page]
For access to the PRSB information modelling tool (to download in different formats) please contact email@example.com
Information governance framework
An overarching information governance framework is being developed and will be published later this year.