Sharing data can make care better and safer for all those who receive it - even saving lives.
The PRSB has teamed up with Understanding Patient Data to help produce a series of new videos to highlight the importance and impact of information sharing. At the PRSB we aim to produce better health and social care records for better care. As the NHS and social care embrace the power of digital ways of working we need to standardise the content so that information can be shared digitally whenever and wherever it is needed to ensure people can always receive safe, effective care. This will help patients and carers who will only have to share information once, and their records will be available in every care setting including at home.
As well as enabling better clinical care, that shared data can help us to better diagnose different conditions and develop new treatments. It enables us to spot patterns in healthcare, work out where more services are required and anticipate what may be needed in future. Patient information can also be used to better understand certain conditions, and work out new and better ways to cure and eradicate them.
The Understanding Patient Data campaign was set up to support conversations with the public, patients and healthcare professionals about how health data is used. The campaign will be launching a series of films throughout March to cover the following topics:
An animation will follow shortly that explains the role of the PRSB and how our work will enable better sharing of data for many purposes.
Why is it important we collect and share data?
It is critical that information can be recorded and shared for many reasons:
- For research so services can be better planned and more efficient
- For auditing so we can make sure services are of a high quality
- For IT systems to enable better sharing across many healthcare professionals involved in a patient's care
Find out more at understandingpatientdata.org.uk
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How is patient data used?
Research - Researchers can use information to better diagnose different conditions and develop new treatments. It also enables us to spot patterns in healthcare, work out where more services are required and anticipate what may be needed in future. For example, public health officials can use data to increase disease awareness and prevent outbreaks of serious illnesses such as measles and whooping cough.
Patient information can also be used to better understand certain conditions, and work out new and better ways to cure and eradicate them. It can be used to monitor the safety and effectiveness of drugs, leading to better and safer care for all those who receive it. Using the right patient data in a safe and controlled manner is essential for the future of healthcare.
Find out more about how we share and use data
Supported by research on past patient data, a specialist confirms that Ann has dementia. Ann and Derek decide together to contribute to future research.
Heart attack patient
Patient data about Keith was used to avoid an allergic reaction and also helps future patients going through cardiac rehabilitation.
Sharing data about Diabetes
Mandeep is looking forward to her first baby, but she’s been struggling to keep on top of her diabetes, and finds the constant testing stressful. Data from other women with diabetes helps to improve Mandeep's care and patient data about her will help the care of others too.
By comparing patient data across the UK, Alex’s hospital helped improve the lives of young people with asthma in their area.
Data from previous cancer patients can help others