Partner event recap: the About Me breakfast briefing

The About Me standard was the focus of March’s partner event and the session focused on why the standard is important, how it can make a tangible impact on health and care and the challenges suppliers might encounter when implementing it.

PRSB’s Clinical Director, Dr Nilesh Bharakhada kicked off the session by contextualising the About Me standard within the NHS’s broader personalised care agenda. Personalised care gives people more control and choice when it comes to how their care is planned and delivered, and the About Me standard helps to do just that by allowing people and their clinicians to record extremely individualised information about the person by using a free text structure with the option to even record multimedia files. The standard, first published in 2020, is part of a broader suite of standards aimed at using seamless information sharing to enhance personalised care, which also includes the personalised care and support plan standard and PRSB’s upcoming shared decision-making standard.

Sam Goncalves, researcher at RIX Research and Media and parent carer, then shared her experience of using the About Me standard to record and share critical information about her son Shane, who has disabilities. Sam was the citizen lead for the About Me standard project and used her first-hand experience of the challenges Shane faces to ensure the standard was fit for purpose in the real world. The About Me standard, Sam explained, is not a substitute for clinical information but complimentary to it, providing personalised information in addition to basic medical notes. For example, Shane’s constipation medication is on his GP record but what isn’t on his record is that Shane needs this medication to be mixed with Weetabix to tolerate it – and this information can only be found by using the About Me standard.

The last part of the session was a panel discussion, featuring head of Product Management at Person Centred Software, Andrew Coles and CCIO at Oxleas NHS Foundation Trust Dr James Woollard, who were joined by Sam and Nilesh. The panellists faced questions about the standard’s impact on care outcomes, who the standard will benefit most and how the standard fits alongside other standards, making for a substantive discussion and Q&A. Dr James Woollard highlighted that while it will take time until we can quantify the results of using About Me on patient outcomes, the qualitative results are already being seen. James said that being able to see more information about the person, particularly his young patients who may be apprehensive about coming to appointments, allows him to get to know them better and build a trusting relationship from the start.

You can view and download the About Me standard here.

PRSB on Twitter

PRSB

- May 25, 2022, 1:09 pm

.@ukfci are leading consultations on @NHSTransform’s new standards and interoperability strategy, and are looking for feedback from a wide range of voices. Find out more: https://t.co/kGdC1JpIgj
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PRSB

- May 25, 2022, 9:00 am

‘About Me allows for a person’s preferences to be digitally transferred to care providers, giving them the confidence that they have all the information they need.’ @NCFCareForum CEO @vicrayner is supporting the #CareAboutMe. Find out how you can too: https://t.co/VVV9II0gfR https://t.co/DRIW5oH198
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PRSB

- May 24, 2022, 11:33 am

Welcome! Fantastic to have you on board. https://t.co/KqnajEpT9f
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