Professor Maureen Baker
Chair, The PRSB
Date: 9 January 2018
In the past 12 months we’ve seen huge strides in digital healthcare transformation, with new innovations including the launch of the NHS Digital Academy and exciting initiatives to build a digital workforce.
We’ve also seen progress in information sharing, as more and more health and care professionals begin to recognise how integral standards are to providing high quality, safe and efficient care for patients. Since I joined the Professional Record Standards Body at the end of last year, it’s been fantastic to see some our core goals achieved. I’m proud to say that in the coming months, we will complete our full suite of standards for transfers of care. For us it’s going to be a real landmark achievement that will ensure information is shared easily and quickly between professionals anywhere a person receives health or social care. Last year we published the updated e-discharge summary standard for patients leaving hospital, the emergency discharge standard, the mental health and crisis care standards, and the outpatient letters standard. And after the publication of the standard for clinical referrals, which we’re expecting in spring, this important work will be complete.
While we’ve seen increased interest in the benefits of information sharing from health and care professionals, getting standards used in frontline services is still a big challenge for us. This year we hope to see some evidence of better outcomes for people who use services, as a result of using standards. Making the case for better safety and quality in health and care even stronger, it will definitely help to spread support for change far and wide. One of my main goals since joining has been to raise awareness about the importance of good information sharing. I want professionals to understand that it’s so much more than a simple compliance exercise, it’s just as important as diagnosis or medication for the delivery of good quality, safe care.
Another area we’re keen to see change this year is around integration of different health and care services. As the number of people living with complex and long-term conditions continues to grow, they are being supported by numerous different services in both hospitals and the community. Good information sharing between these services is essential, and will ensure that both people who use services and their care professionals will have access to the right data at all times, to make informed decisions. In 2018 the PRSB standards for care plans and maternity records will be completed, helping to put people at the very forefront of their own care. As well as being able to see to their own records, it will ensure that all professionals involved in their care can also access their records to make better, personalised decisions about their care.
I’m really excited to be starting this year with your support and I hope we can make real strides in the development and implementation of better information sharing. If you’d like to get involved with our work, please contact info@theprsb.org for more information.
A review of a sample of current care plans, and the way they have been developed, may be helpful in identifying the priorities for this improvement. The PRSB Implementation Guide provides more detailed explanations about each element of the plan, including advice on how the planning process might be best conducted.
These questions might form a checklist for current plans to be compared with.
1. Does the plan include an About Me section in which the service user, in their own words, can indicate the information they want to be available about their lives, their values, their interests, and priorities, available for all those who may care for them?
2. Is the approach to developing a care plan patient centred and engaging, allowing plans to be based on patient priorities goals, and aspirations, along with the actions they plan to take and the support that they will receive?
3. Is there space for a “formulation” to be recorded in which the person receiving care and the professionals who provide it, share and record the personal meaning and the origins of the person’s difficulties?
4. Are relevant procedures and therapies recorded?
5. Where relevant, are one or more contingency plans included for anticipatable disruptions, exacerbations, or deterioration, and do they include advice on what to do and points of contact for those called upon to respond?
6. Where relevant are additional supporting plans incorporated, (an example being an “educational and health plan” for someone with a neurodevelopment disorder)
7. Is a version of the plan available to a service user (if they wish to have it) in a form and format that they can understand and find to be of value?
8. How is a version of the plan available to the GP and other key parts of the health and care system?
Work conducted by PRSB and partners recently has looked specifically at the suitability of this approach to the development and documentation of care and support plans for people with Severe Mental Illness. This resulted in an updated version of the standard (v1.4), for use by any service and for any group of service users, but with some modifications to ensure that it meets the needs of this community. The approach to a patient centred process of identifying goals, hopes, and values, and the support needed to achieve them, is fully compatible with and can be conducted using, specific tools in use in mental health, such as DIALOG, DIALOG+, and ReQoL, for example.
Where analysis indicates the need for improvement in the content and process of personalised care and support planning for patients with Severe Mental Illness, specific improvement projects should be instituted to co-design with service users and their representatives, and the relevant staff groups, new approaches, and documentation that would be of value in delivering improvement. The toolkit includes a range of existing resources that could be used to engage in this improvement work, including signposting to relevant existing approaches informed by patient experience-based design.
A review of a sample of current care plans, and the way they have been developed, may be helpful in identifying the priorities for this improvement. The PRSB Implementation Guide provides A key development, consistent with national policy on support for Personalised Care across all health and care sectors, is the move towards an individual with complex needs having a single, integrated, care plan, rather than a series of plans developed by different parts of the health and social care system in isolation of one another. For a patient with severe mental illness, the related concerns and challenges might form a very prominent part of such an integrated plan; many will also have concurrent health challenges and needs. The intention is that the relevant services work together to plan and wrap support around the patient and their family in an integrated way, rather than as a series of sequential or disconnected encounters in which the service user or their friends and family have to adopt the role of the integrator.
A starting point would be to agree priority groups of service users who may already have more than one care plan because they need care from more than one part of the system of health and social care. This could be initiated by looking at service users registered with some sentinel practices or PCNs. Alternatively, the approach might focus initially on people with defined co-morbidity or risk that entails collaborative care with agencies beyond specialist mental health services.
The focus here is on the process of care planning and agreement on what should be shared, rather than solely on the technology used;
1. What is the process to agree which professional will initiate care planning and act as the “lead point of contact” for the service user?
2. Will initial plans be agreed with the service user in joint consultations or sequentially? Where and how will they be conducted?
3. What will be the process to agree the elements of the plans which should be available to professionals and potential authorised users beyond the immediate care teams, (A&E services, Ambulance Services, Social services, etc.) with the service user’s consent?
4. How will elements of the plan be updated following consultations in a way which is proportionate, to allow contact and progress notes to be maintained by the service conducting the consultation, whilst avoiding unnecessary work for partners in care if there is no significant change to the personalised care and support plan?
5. What are the implications for workload, logistics, and administration arising out of these decisions?
The answers to these questions and others will best be elicited through focused joint working, grounded in real, or at least realistic examples. This will entail process mapping, and co-design with a range of professionals, service users, and families. Resources from the toolkit and outputs from the Simulation element of this project will be valuable. Some organisations would adopt an approach such as a Rapid Process Improvement Workshop, planned over several weeks and conducted over a number of sequential days, to develop prototype ways of working that could be tested in the field.
