26 April 2017


The Wellcome Trust has launched 'Understanding Patient Data' campaign

More than two thirds of the population feel they don't understand how data is used by the NHS, according to research conducted by Wellcome Trust.


Understanding Patient Data has been set up to support better conversations about health information and how it can be used. The PRSB is supporting Wellcome's patient data project, which is working to ensure that everyone has a full understanding of digital health information, for the delivery of better care. The aim is to develop tools and resources to help inform discussions and support the responsible use of data.

The project will support discussions with the public, patients and health and care professionals to help them understand how data can be used, the risks and benefits of its use and how it can be safeguarded. Wellcome aims to help people make informed decisions about how their data is used, examine the issues that emerge from the use of data-driven technologies and help to inform NHS England, the Department of Health and NHS Digital policy and communications.

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